{"id":20341,"date":"2026-05-11T11:00:07","date_gmt":"2026-05-11T09:00:07","guid":{"rendered":"https:\/\/www.bio-sistemak.eus\/?p=20341"},"modified":"2026-05-11T11:48:05","modified_gmt":"2026-05-11T09:48:05","slug":"gaixotasun-arraroen-lanketa-integralari-buruzko-topaketa","status":"publish","type":"post","link":"https:\/\/www.bio-sistemak.eus\/eu\/gaixotasun-arraroen-lanketa-integralari-buruzko-topaketa\/","title":{"rendered":"Gaixotasun arraroen lanketa integralari buruzko topaketa"},"content":{"rendered":"

Gaixotasun arraroen lanketa integralari buruzko topaketa<\/h1>\n

Ekitaldia BIOEFek antolatu zuen BAT Dorrean, eta 80 osasun-profesional eta paziente-elkarte inguru bildu zituen.<\/h4>\n

Joan den maiatzaren 8an, Bilboko BAT Dorrean<\/a><\/strong><\/span> “Gaixotasun arraroei modu integralean heltzea<\/strong>” jardunaldia antolatu zuten BIOEFek<\/a><\/strong><\/span>, Roche Farma<\/a><\/strong><\/span>, Sanofi<\/a><\/strong><\/span>, Ipsen<\/a><\/strong><\/span> eta Boehringer Ingelheim<\/a><\/strong><\/span>-en laguntzarekin. Osasun, ikerketa, erakunde eta pazienteen elkarteetako 80 profesional inguru bildu ziren.<\/p>\n

\"\"<\/a><\/p>\n

Lorea Mendoza<\/strong><\/span><\/a> BIOEFeko koordinatzaile zientifikoak gidatu eta moderatutako topaketaren helburua izan zen oso ohikoak ez diren gaixotasunak artatzeko eta ikertzeko estrategiari, aurrerapenei eta erronka nagusiei buruzko ezagutza partekatzea eta elkarrekin hausnartzea<\/strong>, arreta berezia jarriz diagnostikoaren, tratamenduen eta eragindako pertsonen bizi-kalitatearen hobekuntzan.<\/p>\n

Elkarrizketarako eta hausnarketarako foroa<\/h3>\n

Ongietorri instituzionala Osakidetzako<\/a><\/strong><\/span> zuzendari nagusi Miren Lorea Bilbaok<\/a><\/strong><\/span> egin zuen. Programak bi mahai-inguru izan zituen: bata Estrategiak eta aurrerapenak gaixotasun arraroetan eta bestea Ikerketa eta berrikuntza gaixotasun arraroetan.<\/p>\n

Lehen mahaian, Ane Fullaondo<\/a><\/strong><\/span> Biosistemak erakundeko zuzendari zientifikoa izan zen, eta honako hauek parte hartu zuten: Beatriz Castillo, Basurtuko Unibertsitate Ospitaleko Neurologia Zerbitzuko (Bilbo-Basurtu ESI)<\/a><\/strong><\/span>; Leticia Ceberio<\/a><\/strong><\/span>, Gurutzetako Unibertsitate Ospitaleko Barne Medikuntzako Zerbitzuko (Ezkerraldea Enkarterri Gurutzeta ESI)<\/a><\/strong><\/span>; Idoya Serrano, Osakidetzako zuzendaritza nagusiko eta Euskadi-Proyecto UNICAS<\/a><\/strong><\/span> erakundeko enbaxadorea, eta Olaia Martin<\/a><\/strong><\/span>, ASEBIER<\/a><\/strong><\/span>-eko zuzendari eta psikologoa.<\/p>\n

\"\"<\/a><\/p>\n

Bigarren mahai-ingurua I\u00f1aki Guti\u00e9rrez Ibarluzea<\/a><\/strong><\/span> Eusko Jaurlaritzako Osasun Saileko Ikerketa, Berrikuntza eta Ebaluazio Sanitarioko zuzendariak moderatu zuen, eta Eva Bermejo<\/a><\/strong> Gaixotasun Arraroak Ikertzeko Institutuko (IIER)<\/a><\/strong><\/span> zuzendari zientifikoa eta Carlos III .a Osasun Institutuko<\/a><\/strong><\/span> ikertzailea, Javier de las Heras Gurutzeta Unibertsitate Ospitaleko (Ezkerraldea-Enkarterri-Gurutzeta ESI) Sortzetiko Nahasmenduaren Unitateko ikertzailea, Cristina Irigoyen<\/a><\/strong><\/span> Donostia-Donostialdea ESIko Unibertsitate Ospitaleko Oftalmologia zerbitzuko kidea eta Juana Mar\u00eda Sa\u00e9nz<\/a><\/strong><\/span> ASEBIERen sortzailea bildu ziren.<\/p>\n

Era berean, arlo kliniko, ikertzaile eta asoziatiboko erreferentziazko profesionalek parte hartu zuten jardunaldian, baita Gaztela eta Leongo Gaixotasun Arraroen Plan Integralaren (PIERCYL)<\/a><\/strong><\/span> aurkezpena ere, planaren zuzendari zientifiko Mar\u00eda Isidororen eskutik.<\/p>\n

\"\"<\/a><\/p>\n

Biosistemak taldeak dinamizatutako partaidetza-tailerra<\/h3>\n

Topaketaren esparruan, beharrak eta helburuak identifikatzeko tailer parte-hartzaile<\/strong> bat egin zen, Euskadin gaixotasun arraroei modu integralean heltzeko bidean aurrera egiteko. Tailerra gure Institutuko zuzendariak eta Yhasmine Hamu<\/a><\/strong><\/span> ikertzaile eta proiektuen kudeatzaileak dinamizatu zuten.<\/p>\n

Lankidetza-espazio horri esker, osasun-sistemako eta ikerketako hainbat esparrutatik ekarpenak jaso ahal izan ziren, erronka partekatuak eta etorkizuneko ekintza-ildo posibleak identifikatzeko.<\/p>\n<\/div><\/div><\/div><\/div><\/div>\n","protected":false},"excerpt":{"rendered":"","protected":false},"author":18,"featured_media":20332,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[198],"tags":[2661,2405,2660],"class_list":["post-20341","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-kronikguneren-albisteak","tag-abordatze-plana","tag-bioef-eu","tag-gaixotasun-arraroak"],"yoast_head":"\nGaixotasun arraroen lanketa integralari buruzko topaketa<\/title>\n<meta name=\"description\" content=\"Ekitaldia BIOEFek antolatu zuen BAT Dorrean, eta 80 osasun-profesional eta paziente-elkarte inguru bildu zituen.\" \/>\n<meta name=\"robots\" content=\"index, follow, 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