{"id":18915,"date":"2025-11-05T12:00:54","date_gmt":"2025-11-05T10:00:54","guid":{"rendered":"https:\/\/www.bio-sistemak.eus\/?p=18915"},"modified":"2025-11-05T11:12:46","modified_gmt":"2025-11-05T09:12:46","slug":"hope4kids-en-hasiera-ofiziala-europako-lankidetza-minbizia-duten-haurrentzako-zainketa-aringarrietan","status":"publish","type":"post","link":"https:\/\/www.bio-sistemak.eus\/eu\/hope4kids-en-hasiera-ofiziala-europako-lankidetza-minbizia-duten-haurrentzako-zainketa-aringarrietan\/","title":{"rendered":"HOPE4Kids-en hasiera ofiziala: Europako lankidetza minbizia duten haurrentzako zainketa aringarrietan"},"content":{"rendered":"

HOPE4Kids-en hasiera ofiziala: Europako lankidetza minbizia duten haurrentzako zainketa aringarrietan<\/h1>\n

Biosistemak-eko taldeak aktiboki parte hartu zuen funtsezko ekimen horren hasierako bileran. Bilera hori lau urtez egingo da.<\/h4>\n

Joan den astean, Amsterdamen, Europako pediatriako arreta aringarrian aurrerapauso erabakigarria izan zen proiektu bat hasi zen. HOPE4Kids<\/strong> Europako Ekintza Bateratuaren hasierako bilera lau urtez luzatuko da, eta minbizia duten haurren bizi-kalitatea hobetzeko eta zainketa aringarri pediatrikoen inguruko osasun-sistemak indartzeko konpromisoa duten Europako 70 erakunde baino gehiagoko 140 parte-hartzaile baino gehiago bildu zituen. Biosistemak, proiektuaren onuradun bazkide den aldetik, parte-hartze aktiboa izan zuen ekitaldian, Dolores Verdoy<\/a><\/strong><\/span> proiektuen koordinatzaileak eta Maite Zabala<\/a><\/strong><\/span> ikertzaileak ordezkatuta.<\/p>\n

\"\"<\/a><\/p>\n

HOPE4Kids (izen osoa: “Zainketa aringarri onkologiko holistikoak Europako haurrentzat”) 23 herrialdetako hirurogeita hamar erakunde baino gehiago biltzen dituen Princess Maxima Centerrek<\/a><\/strong><\/span> koordinatutako ahalegina da. Proiektu honen helburua haur eta familia gehiagok beren premia fisiko, emozional eta espiritualei erantzungo dien arreta pertsonalizatua jasoko dutela bermatzea da, diagnostikoaren hasieratik bertatik.<\/p>\n

Fokua bizi-kalitatean<\/h3>\n

Urtero, 25.000 haur<\/strong> inguruk jasotzen dute minbiziaren diagnostikoa Europan. HOPE4Kids-ek sustatzen dituen zainketa aringarri pediatrikoek bizi-kalitatean, sintomak arintzean eta familiei prozesuan zehar orientazioa eskaintzean jartzen dute arreta, bizitzaren amaierako tratamenduei eta zainketei buruzko erabaki zailak barne. Gaixotasunaren zuzeneko tratamendua nagusi den ospitale askotako arreta tradizionalarekin kontrastean, proiektuak haurren tratamendu onkologikoan zainketa aringarri espezializatuak funtsezko pieza goiztiar gisa kokatu nahi ditu.<\/p>\n

Proiektuak ekosistema europar bat egituratzen du, non osasun-hornitzaileak, ikertzaileak, arduradun politikoak eta familia-erakundeak elkarlanean aritzen diren. 20 ikerketa-erakundek, 21 ospitalek eta hiru guraso-erakundek parte hartzen dute, eta Europar Batasunak 12 milioi euroko<\/strong> finantzaketa ematen dio, EU4Health<\/a><\/strong><\/span> programaren barruan.<\/p>\n

Institutuaren funtsezko zeregina<\/h3>\n

Biosistemak HOPE4Kids-en papera estrategikoa eta alderdi anitzekoa da. Euskadi ordezkatuz, Institutuak diseinatutako esku-hartzeen iraunkortasunaren koordinazioa eta jarraipena egiten du, eta, horrez gain, Euskadin benetako inguruneetan irtenbide zehatzak baliozkotzeko ezarriko diren pilotuak kudeatzen ditu.<\/p>\n

HOPE4Kids aurrerapen erabakigarria da haur bakoitzaren eta haren familiaren zirkunstantzia espezifikoetara egokitutako kalitatezko arreta aringarri pediatrikoa bilatzeko. Proiektuaren helburua da Zaintza Plan Indibiduala<\/strong> garatzea, Europa mailan aplikagarria, baita etxeko zaintzarako euskarri digitala eskaintzea eta familiei informazioa eskuratzeko erraztasunak ematea ere.<\/p>\n

Arreta klinikoa, hezkuntza eta politika publikoen babesa uztartzen dituen eredu integral honek Hope4Kids kontinente osoan minbizia duten milaka haurren bizitza eraldatzeko gai den ekimen gisa kokatuko du. Biosistemak HOPE4Kidsekin Euskadirekin eta Europarekin duen konpromisoa berresten du, bizitzak hobetzen dituzten pediatriako zainketa aringarrien berrikuntza gidatzeko.<\/p>\n<\/div><\/div><\/div><\/div><\/div>\n","protected":false},"excerpt":{"rendered":"","protected":false},"author":18,"featured_media":18912,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[198],"tags":[2536,2537,2539,2538],"class_list":["post-18915","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-kronikguneren-albisteak","tag-hope4kids-eu","tag-oncologia-pediatrica-eu","tag-onkologia-pediatrikoa","tag-zainketa-aringarriak"],"yoast_head":"\nHOPE4Kids-en hasiera: Minbizia duten haurrentzako zainketak<\/title>\n<meta name=\"description\" content=\"Biosistemak-eko taldeak aktiboki parte hartu zuen funtsezko ekimen horren hasierako bileran. 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